If you or a loved one has a rare disease or medical condition, Rare Patient Voice offers a unique opportunity to make money while contributing to meaningful medical research. By participating in focus group studies, you can earn $120 per hour while helping researchers develop better products and services for patients like you.
How Rare Patient Voice Works
Rare Patient Voice connects patients and caregivers with market research studies focused on improving medical treatments and patient care. Participants share their experiences through surveys, interviews, or focus groups. Your input goes directly to the researchers and companies working on new healthcare solutions.
How You Get Paid
Participants are paid after completing a study, either via printed checks or electronic payments (if selected). Some studies also offer gift cards as compensation, particularly for shorter surveys. While payments are not made daily or instantly, they are processed promptly upon study completion.
Who Can Participate?
Rare Patient Voice is available to residents of the United States, Canada, the United Kingdom, France, Germany, Italy, Spain, Australia, and New Zealand. If you live in one of these countries and have experience with a rare disease—either as a patient or caregiver—you can qualify for these studies.
Why You Might Not Qualify for a Study
Not everyone qualifies for every study, as research projects target specific conditions and demographics. Additionally, some studies fill up quickly once they reach the required number of participants. If you don’t qualify and want to understand why, you can reach out to the project manager for clarification.
How to Get Started
All study invitations are sent via email, so keep an eye on your inbox for new opportunities. Your data and responses are strictly used for market research purposes, and Rare Patient Voice does not access your survey or interview answers—your insights go directly to the client conducting the study.
Why Participate?
Beyond earning $120 per hour, your participation can make a real difference. By sharing your personal experiences, you’re helping shape the future of medical products and services designed to improve the lives of those with rare diseases. Your voice matters—not just for yourself, but for others navigating similar health challenges.
Final Thoughts
Rare Patient Voice provides a flexible, rewarding way to earn money while contributing to crucial medical research. If you qualify, you can take part in studies from the comfort of your home, helping advance healthcare solutions while being compensated for your time. It's not the best way to make money consistently, but if you or a loved one has a rare condition, consider signing up and letting your voice be heard!